Alec Baldwin Gets Lyme Disease

Wouldn't that be something if they portrayed the frustration of going to a doctor only to be told 'it's all in your head!?"

I only wish it were all in my head, and then I could be well!!!

Please help, we can't get doctors to treat Chronic Lyme in Texas

Doctors do not believe there is Lyme in Texas. My son has lyme disase was diagosed with Lyme with the Bulls eye rash in 1989. He got sick in spring of 1988 but not diagosed until Christmas of 1989. He is still suffering from Lyme and doctors are telling me that he must have gone out of state and come back to Texas, there reason is They do not believe in Chronic Lyme Disease.
Doctors have told me that this is only in the North East We don't have Deer Ticks. Personally I don't care what kind of tick it was that bit my son, he got Lyme Disease from it. WE need help in Texas, if Alec Baldwin is serious about this movie we sure could use his help here in TEXAS to talk with us to give us a voice as well.

People in the South are suffering we need help

Mom in Texas on a mission to save her son.

I'm a 25 year old young woman, and I have had lyme disease for the better part of my life. 15 years of it at minimum.

Show the truth about this disease, I live in LA. I can help. Point directions, make the heartbreaking realities funny. Like that you never just get lyme it comes with hidden co-infections that remain in your body and slowly destroy it.

PLEASE use this movie to change the social climate, the CDC's definition of the disease because it is FALSE. And Help us.... and help the children, so they don't end up bed ridden like I once was.

And my battle is not over.

The only thing truly funny about Lyme Disease is how absolutely stupid it makes the government, health care industry, and health researchers look. Because.... they have missed the biggest discovery of the century.

But WE know. WE have the secret. Let the secret out. WE beg you.

I can not imagine Lyme and comedy in the same sentence let alone a movie.

Yep, Lyme is just too good a cash cow for Big Pharma and Big Healthcare. The 'great imitator' keeps people coming in to the doctor with everything from arthritis to heart disease-- Write a new whiz-bang prescription -- Ka-Ching goes the cash register! More money into the pockets of Big Pharma! Further into the red goes the poor, unknowing Lyme victim's bank account. Further down the tubes goes their life.

Hilarious stuff, for sure. I personally lost over $100,000, a career, most friends, and any remaining faith in U.S. mainstream medical.

If Martin Scorcese and Alec Baldwin actually make a "Chronic Lyme Doesn't Exist" movie, we will know they're getting paid off by Big Pharma or some such other corrupt faction.

Incidentally, I sure hope they mention the equally-serious co-infections like Babesia and Bartonella that the IDSA pretends not to know about. Almost all 'Lyme' cases now involve multiple co-infections, all with debilitating symptoms.

Furthermore, I wonder if they'll mention the Biological Research Lab across the Long Island Sound from Lyme, CT, at Montauk, Long Island. This place has been investigating potential biowarfare agents for a long time. Too bad they're so careless about keeping the stuff from getting out.

Will this movie talk about the patent that the US Army has on mycoplasma, yet another Lyme co-infection?

I predict the answer is no. But I can always hope that this movie will serve to educate, rather than dumb-down. IDSA is already doing such a thorough job of that.

Meanwhile, Lyme folks here should check out MMS:

http://www.mmslymecure.com/

more info:

www.miraclemineral.org

Lymies, we need to start taking our healthcare into our own hands. This offers a lot of promise. It's only about $15 a bottle. No, I don't sell it. I sure do hope it works, because I am getting sick and tired of being sick and tired. Good luck to the other Lymies on here.

I really dont know what you think is funny about "Lyme" disease, but It is not. Alec Baldwin being an actor I like very much am surprised would make a mockery out of such a serious and debilitating illness that affects so many (Including my 11 year old son)

I truly hope this is done tastefully and informativly, or you are going to have a LOT of angry people NOT seeing your movie

Update! Gosh, I don't know where I got Martin Scorsese's name!! I know I read it somewhere about him having something to do with this film from ANOTHER site! Can't find it.

Also, since I've had NEURO LYME for 38 years, anything is possible with my mind!

I don't think this site allows me to EDIT mistakes, so this will have to do! HAPPY EASTER TO ALL! Betty

Ed:

I guess I am not like you, as I have never seen an independent comedy on Lyme disease.

This movie was developed at the Sundance Film Workshop, so it has some credibility, I think.

The Tribeca Film festival in April will include a really excellent documentary on Lyme disease called "Under Our Skin". There you will get a good idea of the scope and seriousness of the disease and the other diseases that can be co-infections with it. Check it out.

I am glad the movie you discussed includes real estate issues. Real estate and tourism may be part of the reason that Lyme disease has been pooh-poohed and shoved under the rug over all these years - 40 so far since it was identified - resulting in little useful research, no accurate tests, and poor treatment options.

p.s.
I am pretty sure Martin Scorsese has nothing to do with this film

This idea is controversial, but then "Lyme" is controversial. "Lyme" beyond the acute stage is really a "Th1 inflammation". The bacterium that causes "Lyme" is one of fifty-three known bacterium that causes the "The inflammation", and is the reason that sooo many people cannot get tested Positive for "Lyme", but yet seem to have the illness. For more information, go to www.autoimmunityresearch.org or www.bacteriality.com, and read the articles that are linked in the right hand column. The truth is that the IDSA docs do not know what chronic "Lyme" is, and the ILADS docs only know the answer partially.

You have GOT to be kidding. A movie about the disease that has brought nothing but heartache and suffering to my family including my 3 year old who was born with it. I'm so not happy about this.

Over the years, Martin Scorsese has "gone places" with his honesty in movies.

So very many citizens in the US suffer from chronic Lyme disease, a very painful and disabling disease that wrecks lives, divides families and very often causes financial disaster. The overwhelming majority of doctors ignore us--by belittling us.

Chronic Lyme disease is defined as a brain infection of the Lyme pathogen: neuroborreliosis, a neurological disease.

About half who get Lyme disease are children. Often they can't go to school and can't participate in life with their friends. It can hurt to think. 90% of kids with Lyme have bad head pain. But will these kids (and adults) get the antibiotic treatment they need to help them?

The infectious disease doctors in the US (IDSA) lie by saying chronic Lyme disease does not exist. They do the bidding of many for-profit health insurance companies that don't pay for treatment.

It is profits over patients.

Who else profits? The painkiller, statin and antidepressant superindustries. Follow the money.

The overwhelming majority of people with wrecked lives caused by Lyme don't know that Lyme is the name for their illness. It's the magic keyword on the Internet to connect with others.

We'v been ignored for decades.

Except by ILADS (International Lyme and Associated Diseases Society) physicians--our hero doctors!

However, some of our hero doctors have had to fight legal battles for all of the above reasons.

And I wonder, where has America gone?

I refer readers of my comments to PJ Langhoff's 2 new books of a 3 book series, "It's All In Your Head." These contain Lyme patient stories. My story is in there.

As are stories from around the world. Ticks with Lyme can't read road signs!

I look forward and am grateful for Mr. Scorsese and Alec Balwin's efforts in the upcoming movie, Lymelife.

Diane J. Marie

To Martin Scorsese and Alec Baldwin,

I hope you will use FACTUAL info about CHRONIC LYME disease patients in this lyme story of Alex getting lyme disease.

I do hope this movie will show this as CHRONIC lyme, and not a tick bite embedded or a bulls-eye rash where the patient is lucky enough to get to a LYME LITERATE MD PROMPTLY and cured!

I've had chroinc lyme disease for 38 years; 34 years MISDIAGNOSED by 40-50 drs. I have many other complications since I believed every drs. OTHER diagnosis they gave me for 34 years.

In my case, it was a tick off my folk's LIVE CHRISTMAS tree that bite me 1969! I was able to track this back using my journal diaries! It was sub-zero Iowa weather so I wasn't outside gardening; I had no pets and neither did my roommates. All normal ways of getting bitten were NOT present.

I hope most of all that Martin's movie will get into the LYME CONTROVERSAY!!

Our good LLMD, lyme literate MDs from ILADS, International Lyme Associated Disease Society vs. the bad drs., IDSA, Infection Disease Society of America, who do NOT believe in CHRONIC LYME.

The IDSA drs. treat for UNDER 30 DAYS! They proclaim the patient, CURED OF LYME! NO WAY JOSE! HOG WASH !! The IDSA drs. are responsible for us being in such bad shape as we are, and of the MANY LYME DEATHS due to other complications of chronic lyme.

Martin, I do hope you will get Wisc. author, PJ LANGHOFF'S, recent 2-08 lyme series books, "IT'S ALL IN YOUR HEAD". Book 2 has 80 lyme patients internationally in it; I'm in this one.

Book 1 has the basics of lyme disease, and 8 other lyme patient stories including of 2 patient's lyme deaths, and part of PJ's continuing lyme story with the 12 year COURT system in trying to get her 2 children back from her ex-husband.

Book 3 will cover other things including controversial lyme subjects!

Martin, I have respected your work for decades, and I hope you will get our CHRONIC LYME DISEASE story across where our family, friends, co-workers turn their backs on us since we do NOT have a VISIBLE illness; it's all INVISIBLE!

Martin, I enjoyed them recently honoring you for your work!! Kudos Martin to a very deserving man.

I also hope you touch on this: the high costs of finding a LLMD/lyme literate MD to treat us who will NOT TAKE INSURANCE; the health insurance companies refusing to pay ANY LYME RELATED EXENSES; the loss of jobs, a spouse, your children, your home, bankruptcy, and being homeless!

How our veterans do NOT receive help from our US govt. on paying any of their lyme expenses when they were BITTEN WHILE IN SERVICE!

Looking forward to a 1st class chronic lyme movie! Thank you all!